Curing NF

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Gene Therapy Initiative Annual Meeting Highlights

We recently held our Annual Gene Therapy Initiative, highlighting the findings of our gene therapy research team as they make progress with preclinical model systems. Learn more about our findings and how we are accelerating a cure for NF.
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Gilbert Family Foundation Contributes Nearly $375 Million in Partnership with Henry Ford Health to Bring Shirley Ryan AbilityLab to Detroit and Create the Nick Gilbert Neurofibromatosis Research Institute

DETROIT, September 6, 2023 – The Gilbert Family Foundation (GFF), Henry Ford Health and Shirley Ryan AbilityLab today announced a historic partnership to bring a 72-bed state-of-the-art physical medicine and rehabilitation facility to Detroit. The facility will be managed by Shirley Ryan AbilityLab, and will become part of Henry Ford […]
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Vision Restoration Initiative Annual Meeting Highlights Exciting Milestones

Recently, our Curing NF team held their Vision Restoration Initiative (VRI) Annual Meeting, and our "Dream Team" of experts reported exciting new research to support the development of new therapies for NF patients experiencing vision loss.
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Curing NF Team Learns and Shares Perspectives at 2023 NF Conference

As we continue to work towards our mission of accelerating a cure for NF, our Curing NF team recently attended the 2023 Curing NF conference, the largest convening of experts in the field. There, our team shared and learned best practices, discussed medical research milestones and new initiatives.
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Q&A With Kalyan Vinnakota

This edition of Q&A features Kalyan Vinnakota, Senior Scientific Program Manager who is helping us accelerate a cure for neurofibromatosis (NF1). He leads the Vision Restoration Initiative, comprised of a “dream team” of basic science and clinical researchers focused on developing viable therapies for NF patients suffering from optic nerve […]
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Gilbert Family Foundation Releases 2022 Impact Report

For the first time, the Gilbert Family Foundation is excited to release our annual impact report. This 2022 report highlights the investments we've made and the programs we created in the past year, all of which support our mission to build opportunity and equity in Detroit and accelerate a cure […]
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Children’s Hospital of Philadelphia Receives $10 million Investment From The Gilbert Family Foundation to Accelerate Neurofibromatosis Research

In our efforts to accelerate a cure for neurofibromatosis, we are proud to announce a $10M investment funding neurofibromatosis research at the Children's Hospital of Philadelphia (CHOP), which will support critical medical research via CHOP's Neurofibromatosis Program.
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Gilbert Family Foundation Invests $23 Million Toward Curing Neurofibromatosis with Launch of New Brain Tumor Initiative and Expanded Support for Vision Restoration Initiative

The Gilbert Family Foundation today announced $23 million in grants to fund research projects as part of the organization’s Vision Restoration Initiative (VRI) and Brain Tumor Initiative (BTI).
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Exciting Updates to Gene Therapy Initiative Presented at Annual Meeting

Recently, we brought together nine research teams for our first-ever in-person Gene Therapy Initiative Annual Meeting.
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Watch: Vision Restoration Initiative Annual Meeting Brings “Dream Team” Together to Advance Therapeutic Research

Our Vision Restoration Initiative (VRI) awardees and their teams convened for our VRI Annual Meeting to discuss the results of their research projects focused on vision restoration therapies. Watch the video to learn more about the event and their findings.
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Leading NF and Vision Experts to Convene for Vision Restoration Initiative Annual Meeting

The Gilbert Family Foundation is excited to welcome 28 researchers to our 2022 Vision Restoration Initiative (VRI) annual meeting. We will be discussing the latest breakthroughs in neurofibromatosis type 1 (NF1) optic pathway glioma and vision restoration research.
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Gilbert Family Foundation Furthers Commitment to Curing Neurofibromatosis (NF), Invests Additional $18 Million Toward Gene Therapy Initiative

The Gilbert Family Foundation is excited to announce a new round of three-year grants in the Gene Therapy Initiative to support the development of curative therapies that address the underlying cause of NF1.
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