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Gilbert Family Foundation Collaborates with the Children’s Oncology Group and Children’s Hospital of Philadelphia to Validate a New Tool to Measure Progressive Vision Loss

The Gilbert Family Foundation (GFF) announced the launch of a clinical study that aims to validate optical coherence tomography (OCT) as a tool to objectively assess the visual system and its response to treatment in NF1 patients with optic pathway gliomas.
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Gilbert Family Foundation Commits $11 Million to Combat Vision Loss in NF1 Patients

The Gilbert Family Foundation is excited to announce the launch of its second research institutive to accelerate the development of therapies for neurofibromatosis type 1 (NF1). Around 1 in 5 NF1 patients develop optic pathway gliomas (OPGs) that cause degradation of the optic nerve and subsequent vision loss. The Vision Restoration Initiative aims to develop innovative therapies that either repair or replace the damaged optic nerve to restore vision to these patients.
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Gilbert Family Foundation Announces $12 Million Gene Therapy Initiative to Address Underlying Cause of NF1

The Gilbert Family Foundation's seeks to eradicate neurofibromatosis type 1 (NF1). With our first initiative, we plan to accelerate the development of curative therapies that address the underlying genetic abnormalities in NF1 patients.
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